Hi All
Been a long week and debated for a while what my next blog was going be about. In my mind I keep thinking about friends and family and understanding and sometimes feel so alone on this journey my husband and i are going through with Faith. I know, i know there family and friends support and we genuinely appreciate it all. Yes we hear all will be fine, she strong ,but i feel myself withdrawing more and more because I'm so tired of trying explain the magnitude of Faith future that lies in our hands and the pressure to make sure she is able to get there. We take one day at a time , that's all we can do. I'm passed the stage of explaining Faith situation now cause i have realised no one fully understands the strength and the determination and the will you have to have as a parent of a special needs child to keep going each day not sure what else will prop up.
So Reg and i decided our main focus is Faith and you either with us or you gone, i cant be worried about what other people think anymore or what they say or try and encourage, cause frankly i don't have time, I'm too worried researching ways to help her when she has to leave school and we have to help her continue to study and get an education and she has non verbal handicap and is better verbally and trying figure out how to change things, so she can get an education, get a job, be independent one day. As parents you don't think of this when your child is 11, but for us it is a reality we have to plan way ahead, find out, get info to make sure all this will works out.
Sometimes it can be very lonely, not really having someone understand the enormous emotional, physical and mental drain it takes from you besides working and the normal stresses life brings. I have a friend in Australia her daughter is also special needs and how i wish she was in Cape Town so we can support each other more. It's like 2 lonely souls on the opposite side of the worlds trying to support via every social network cause they know the emotions involved.
You know that saying.' you don't know how strong you are until strong is all you can be' It actually becomes easier not to talk about Faith, not to mention the every day struggles and just rather carry on by yourself cause if only your only stress was my child got a D for a test i would be jumping up and down.
These Blogs actually give me peace and healing and it is the one time i have to myself to shout out and scream my frustration and pain without actually shouting out physically.
I know God has a plan, i know we must believe and we do. I hold on to all the fun and laughter we have and the special moments cause i know those times are the ones that will make our family bond stronger and will keep us going through the days of darkness the ones past and the ones still to come. That's why although been a parent of a special need child can be a lonely journey , i encourage you to reach out to whoever you can and that's why my Blog has become so important to me, the lovely messages , the like posts and the people following me keep me going each day. So thank you and keep reading Faith journey and if i have helped to inspire or help just one child or parent then it has been worth it.
Please see this You tube video on been a special need parent it is short , but beautiful http://youtu.be/T7TC7xBjVqE
