I know for the last 2 and 1/2 months have been talking about her. All the trials we have overcome from her been born premature, the adhd, the anxiety, the learning disability, spatial problems, low muscle tone.
Tell me what do you see.? I see a beautiful, extroverted, strong willed, lovable, sensitive, passionate child that has been on deaths door and has overcome obstacles that many kids have never endured, feeling kids have never felt and fears that children cant imagine.
The silent disabilities that no one can see, because all the disabilities are mental, psychological and on the outside she looks like any 11 year old of her age and because of that people cant understand parents that are over protective, worry more, have routine and are stressed about every little thing. Because they don't deal with the days that she is so all over the place you don't know what to do to keep her busy, or that she gets anxious and upset cause the cat is outside and something is going happen to him and we have to calm her down, or when she has tests and studying is longer and more draining cause she cant understand it and grasp it as easy as every one else and every ounce of energy you have you give over as a parent to help her remember, focus, concentrate, be calm, not stressed and still wake up in the morning and go to work and work a full day and smile and go on .
Have you heard people say the word FINE. OMG how i despise the word . All will be FINE, she strong she be Fine. Have you had that.! I literally want to throw something at someone, seriously!. Until you have dealt with a child with ADHD or has GENERAL ANXIETY DISORDER or goes to a learning disability school and struggles in every subject , or cant skip, , balance or ride a bike or climb or do simple cart wheels because of her LOW MUSCLE TONE. Please do not come and tell me things will be FINE.
Having a child with a silent disability, a disability that cannot be physically seen is very frustrating. People cant relate to something they cant see until i actually have to explain a scenario for them to understand the depth of it.
We do have a lot to be thankful for, please don't misunderstand me, but sometimes i feel like i am on this island all alone and everyone is on some other island partying it up and frankly been FINE , because you the only one that grasps it all. .I stay positive because i have to, i motivate because i must as parent of a special needs child it is what i must do to keep her going and help her to get through life and love and obstacles and all the challenges and help her cope with this all as an adult one day.
My beautiful miracle baby i would not change for anything, she to has taught me about life and what truly matters and to see the world in a different way. All i ask is please don't use the word FINE. nothing IS fine, and nothing is okI it will forever be apart of her and it will never go away, so be careful how you speak to parents with special need kids. Choose your words carefully and if must rather just give a hug cause sometimes we not asking for advice, we just sometimes need some one to listen.
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