“Of all the hardships a person had to face, none was more punishing than the simple act of waiting.”
Faith recently is been checked for her IQ in the the different levels of development and at what age she is working at to determine how to help her best .
This game of waiting for us parents. You know what i mean every test, every checkup, every development milestone is like you holding your breath waiting for the sword to drop.You know that your child has problems but it is exhausting as every year every development holds different outcomes and you don't know what to expect and your heart just cries out thinking how to handle all of these things that the doctors speech therapist, occupational therapist,psychologist , teachers tell you.
Every waiting in anticipation hoping someone would say something positive instead of negative. Always what she cant do, what she cant perform, what she unable to achieve and you as a parent have to look at your child in her eyes and say " You can do anything you put your mind to" with a hope at the same time you believe the same . Without her knowing all the things she is struggling with.
Faiths officially 11 years old now. She is more aware of things and just yesterday she asked me why she goes to Vista Nova. The time is coming where i have to explain every little thing she cannot do and hope that for the past 11 years we have built her confidence up enough to not let it affect her. We anguish everyday over her and at the same time know she has come along way. But that waiting that anticipation for every new thing she has to over come, every new test they want to see how far her development has come. It aches in my heart and i so wish i could just wish it all away, but that wont be wise because we have to deal with reality in order to do the best we can for her for now for tomorrow and her future.
Been a parent of a special needs child is like having your heart permanently on a string , You not sure which way someone is
going yank it and you always holding your breath waiting for something else to hit. Every year it has been something new for
us from the time she was born the anticipation from her survival
to if she would ever make it home, to been home and hoping nothing will go wrong, to wondering if she crawl or
walk at the right age , eat at the right age,say her first word
at the right age. Then on to school and finding how she struggles academically with her spacial that she cant balance or skip at the ages that other kids to, to finding out she has General anxiety disorder and adhd and those are challenges on there own.
The anticipation i feel will never end and all we can do is take one day at a time and thank God everyday that she is this ball of energy that shines through the darkness that we find ourselves in, that she smiles and laughs and jokes and plays and loves and feels and take every moment as it comes with a hope for the next drop of the ball to hope it may get a little bit easier for Faith and for us. But we leave all of these in Gods hands for he must have a plan and to keep us strong for every time we have to wait with anticipation for the next hurdle to overcome.
“Of all the hardships a person had to face, none was more punishing than the simple act of waiting.”
Faith recently is been checked for her IQ in the the different levels of development and at what age she is working at to determine how to help her best .
This game of waiting for us parents. You know what i mean every test, every checkup, every development milestone is like you holding your breath waiting for the sword to drop.You know that your child has problems but it is exhausting as every year every development holds different outcomes and you don't know what to expect and your heart just cries out thinking how to handle all of these things that the doctors speech therapist, occupational therapist,psychologist , teachers tell you.
Every waiting in anticipation hoping someone would say something positive instead of negative. Always what she cant do, what she cant perform, what she unable to achieve and you as a parent have to look at your child in her eyes and say " You can do anything you put your mind to" with a hope at the same time you believe the same . Without her knowing all the things she is struggling with.
Faiths officially 11 years old now. She is more aware of things and just yesterday she asked me why she goes to Vista Nova. The time is coming where i have to explain every little thing she cannot do and hope that for the past 11 years we have built her confidence up enough to not let it affect her. We anguish everyday over her and at the same time know she has come along way. But that waiting that anticipation for every new thing she has to over come, every new test they want to see how far her development has come. It aches in my heart and i so wish i could just wish it all away, but that wont be wise because we have to deal with reality in order to do the best we can for her for now for tomorrow and her future.
Been a parent of a special needs child is like having your heart permanently on a string , You not sure which way someone is
going yank it and you always holding your breath waiting for something else to hit. Every year it has been something new for
us from the time she was born the anticipation from her survival
to if she would ever make it home, to been home and hoping nothing will go wrong, to wondering if she crawl or
walk at the right age , eat at the right age,say her first word
at the right age. Then on to school and finding how she struggles academically with her spacial that she cant balance or skip at the ages that other kids to, to finding out she has General anxiety disorder and adhd and those are challenges on there own.
going yank it and you always holding your breath waiting for something else to hit. Every year it has been something new for
us from the time she was born the anticipation from her survival
to if she would ever make it home, to been home and hoping nothing will go wrong, to wondering if she crawl or
walk at the right age , eat at the right age,say her first word
at the right age. Then on to school and finding how she struggles academically with her spacial that she cant balance or skip at the ages that other kids to, to finding out she has General anxiety disorder and adhd and those are challenges on there own.
The anticipation i feel will never end and all we can do is take one day at a time and thank God everyday that she is this ball of energy that shines through the darkness that we find ourselves in, that she smiles and laughs and jokes and plays and loves and feels and take every moment as it comes with a hope for the next drop of the ball to hope it may get a little bit easier for Faith and for us. But we leave all of these in Gods hands for he must have a plan and to keep us strong for every time we have to wait with anticipation for the next hurdle to overcome.
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